Relapsing Polychondritis (RP) Archives - The Friends of Patients at the NIH

NIH Doctor Studies Her Own Rare Disease

February 25, 2019 Blog Author

Four years ago, Dr. Marcela Ferrada faced a promising career as a critical care and infectious disease attending physician at both the National Institutes of Health (NIH) Clinical Center and Johns Hopkins. She had attained her goal after completing dual fellowships at the two prestigious medical centers. Then she got very sick. Her diagnosis of […]

A New Frontier for a Rare Disease

December 20, 2018 Blog Author

A year ago, Tedi, 55, loved to bow hunt elk near her home in Montana. She looked the picture of health, but she left her job as a respiratory therapist because she suffered severe bouts of shortness of breath. Recently, on her first visit to the NIH Clinical Center, she pulled a portable respirator behind […]

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