Heather, a 45-year-old single mother from Hartford, Connecticut, has good news! (Friends brought you Heather’s story in January). She suffered chronic illnesses and multiple hospitalizations for five years, but doctors couldn’t figure out what was wrong. Then she came to the NIH, was diagnosed with a rare blood disorder – HES – and enrolled in […]

Heather struggled with chronic illness and multiple hospitalizations for five years. But her doctors couldn’t figure out what was behind the 45-year-old Connecticut woman’s many unpredictable symptoms, which took both a physical and emotional toll and robbed her of her job security. But last fall, Heather’s hematologist reached out to a colleague at the National […]