THANK YOU FOR YOUR SUPPORT

We asked. You answered. Over the past two weeks you, our supporters, have helped us provide for patients in need at the NIH by donating to our work. Your generosity has allowed us to give assistance to a mother of three suffering from respiratory disease, a father who is the sole provider for his family […]

“I’m the New Me” – An Update on Madalynn One Year After Her Bone Marrow Transplant

In February 2019, Madalynn was lying in a hospital bed at the Clinical Center, facing complications after her bone marrow transplant. Fast forward to February 2020 when Madalynn, now 24 years old, visited the Clinical Center for her one-year follow-up. She feels happy, healthy and essentially symptom-free. Madalynn suffered from a GATA 2 Deficiency, a […]

2020 Charity Golf Tournament Rescheduled

In an abundance of caution and in the best interest of our guests, sponsors, and staff we have decided to postpone our charity golf tournament, scheduled for April 20th, to later in the year. Please know this decision was not made lightly, we have been in consultation with the expert health professionals that work here at the NIH and have come to the conclusion that moving our tournament date is the best way to ensure the health and well-being of everyone involved during this crucial time.

Resolution of Respect for Grant Matthew Perry

The Friends of Patients at the NIH lost a valued board member on December 14, 2019 with the death of Grant Matthew Perry, aged 66.

Andrew Derr Joins Friends of Patients at the NIH’s Board of Directors

FOR IMMEDIATE RELEASE
BETHESDA, Md. (Jan. 1, 2020)
Today, Friends of Patients at the NIH announces that Andrew Derr has been elected to its board of directors.

Jay Shah Joins Friends of Patients at the NIH’s Board of Directors

FOR IMMEDIATE RELEASE
BETHESDA, Md. (Jan. 1, 2020)
Today, Friends of Patients at the NIH announces that Jay Shah has been elected to its board of directors.

Doc Rock

They’re researchers, scientists and physicians—even the director—at the National Institutes of Health. They’re also just musicians having fun. (Link to article from Bethesda Magazine, 11/4/2019)

Bonnie’s Brain Tumor “Gift”

Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]

Suite America’s Support For Families

Suite America has provided a furnished apartment near the NIH, free of charge, to Friends’ patients and families for seven years. Numerous families have enjoyed the privacy and comfort of the apartment at The Monterrey, located on Rockville Pike, and the many amenities the building offers. James Corry, Director of National Sales in the Northern […]

Aaron’s Story – Bold Treatment and Strong Family Support

Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]

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