Friends of Patients at the NIH is pleased to announce the election of three new members to the Friends at NIH Board of Directors. With their rich experiences in finance, accounting, and development, we are looking forward to working with Donald Hill, Julie Wolf-Rodda, and Rich LaFleur to expand possibilities for Friends at NIH. These […]
It has been a long five-year battle for 38-year-old Marla. Marla has traveled nearly 3,000 miles from Ecuador to the NIH in order to receive treatment for diffuse large B cell lymphoma, a type of Non-Hodgkin’s lymphoma. Marla was attending medical school in 2015 to become an OB-GYN when she noticed that she was experiencing […]
On Friday, June 26th, 2020, Federal News Network’s Federal Drive anchor Tom Temin organized a Motorcycle Ride for Charity to benefit Friends of Patients at the NIH. Fifteen motorcycle riders joined dozens of non-riding contributors to raise more than $5,000 for the Federal Employees Education and Assistance Fund and Friends of Patients at the NIH. […]
Jeremy*, a young man from Louisiana, came to the NIH with a rare immunodeficiency disorder early this year after spending time in a local hospital. Since Jeremy’s mother has been at the NIH with him as his caregiver, she has been unable to work. After exhausting all of her paid leave days and borrowing money […]
In August 2019, 56-year-old Rhonda was experiencing intense back and side pains. Thinking these were complications from an earlier case of pneumonia, Rhonda went to her doctor. Unfortunately, Rhonda had Non-Hodgkins lymphoma, a cancer of the lymphatic system which makes it difficult for the body to fight off infections.
After receiving treatment at the NIH twice in her lifetime, Beth Cooper says that the National Institutes of Health campus feels like home to her. Beth currently serves as the Vice President of Friends of Patients at the NIH’s board, but her ties to the NIH stem back to when she was an NIH pediatric […]
Danielle is only 22 years old, but she has spent over half of her life battling multiple health conditions. Danielle first came to the NIH with severe aplastic anemia in 2007. Although she won her battle with aplastic anemia, Danielle’s kidneys completely failed in 2017. She has been on dialysis ever since, meaning she has […]
Christian’s world turned upside down when he was diagnosed with mycobacterium avium complex (MAC), a widely dispersed infection throughout his body. According to Christian’s doctor, Dr. Steve Holland, due to Christian’s symptoms, it was apparent he has an immune dysfunction. Since Christian’s arrival at the Clinical Center in January, Dr. Holland has been trying to […]
