On the rooftop of our building, I see the lights of a national gem two blocks away — the National Institutes of Health (NIH), our country’s largest research hospital. From this distance, it’s hard to fathom the breadth of activity going on each day in experimental trials. As you walk through hallways with patients’ rooms and […]
I have been involved with the Friends of Patients at the NIH for several years, as a member of the Board of Directors and as a volunteer. This year, the role of this organization has become more important than ever before, with so much uncertainty about the future of funding for the clinical research at […]
Fatima, 19, from Mauritania, celebrated her treatments by naming every bag of life-saving blood cells she received. Her aunt, Mary, through tears, calls her the “bravest” woman she has ever met. Fatima has severe aplastic anemia — her bone marrow produced no blood cells. A year ago, Fatima called her aunt and uncle (Americans who live in Vietnam) […]
“Sickle Cell Disease (SCD) causes immense suffering in patients. When you see a patient in (sickle cell) crisis, you just want to do something.” John Tisdale, M.D. is a physician scientist who has spent his career working with Sickle Cell Disease. Rather than simply focus on seeing patients, Dr. Tisdale splits his time between the lab and seeing patients. […]
Friends at NIH Helps Deliver Hope Anthony P. is a postal carrier. So he knows that old saying -“neither rain, nor sleet, nor gloom of night” – as well as anyone. Unfortunately, Anthony has an illness that can painfully keep him from his appointed rounds and put his life on hold. Anthony has Sickle Cell […]
