From Nov 2017 Newsletter… It was a party with a mission at Friends of Patients at the NIH’s recent annual Gala in Bethesda. Patients and researchers were the guests of honor. Seventeen-year-old Dixon, who has Sickle Cell Disease, and his father, Leonard, both from Uganda, were featured in a video describing how his illness can […]
From Nov 2017 Newsletter… Michael points out the apartment window to the fall foliage that’s marked the change of seasons since his arrival at the NIH and reflects on facing the biggest medical challenge of his life. He’s had plenty of reasons to be anxious about the bone marrow transplant he recently received to treat […]
From October 2017 Newsletter Consider becoming a volunteer. Drop us a note and let us know how you’d like to share your talents and time to help patients and we’ll share ideas about how you can help. Friends welcomes individual and corporate team volunteers. Consider looking ahead and making Friends at NIH a part of […]
Destiny’s journey to the NIH for treatment was not easy. This 20-year-old from Montgomery, Alabama was diagnosed with a rare genetic disease, GATA 2 deficiency. GATA 2 is a gene that makes a protein that plays a role in regulating cells in the bone marrow to make red and white blood cells and platelets. But […]
The NIH’s Dr. Steven Rosenberg – Pioneering Researcher, Surgeon, Mentor and Mensch Decades ago, Dr. Steven Rosenberg was the first to show that immunotherapy – harnessing the body’s own immune system to kill cancer cells – could work. Since then, he has been at the center of efforts to advance this fast-emerging field to the point where […]
My name is Sarah Rosenfeld and I’m an NIH patient and volunteer. I’m passionate about paying forward the amazing gift of care and life that my dedicated NIH doctors and researchers have given to me. I’m working to support patients through Friends of Patients at the NIH because I know how incredibly scary and isolating […]
There’s a hidden treasure in our country that I’m proud to introduce you to — the National Institutes of Health Clinical Center where life-saving therapies are being discovered through clinical trials. Every one of the thousands of patients seen here each year is part of a clinical trial — meaning they have exhausted traditional medical […]
I have been involved with an incredible charity for several years, “The Friends of Patients at the NIH”. This year, the role of this organization has become more important than ever before, with so much uncertainty about the future of funding for the clinical research at the NIH – which has led to the discovery […]
