From Nov 2017 Newsletter… Michael points out the apartment window to the fall foliage that’s marked the change of seasons since his arrival at the NIH and reflects on facing the biggest medical challenge of his life. He’s had plenty of reasons to be anxious about the bone marrow transplant he recently received to treat […]
Destiny’s journey to the NIH for treatment was not easy. This 20-year-old from Montgomery, Alabama was diagnosed with a rare genetic disease, GATA 2 deficiency. GATA 2 is a gene that makes a protein that plays a role in regulating cells in the bone marrow to make red and white blood cells and platelets. But […]
My name is Sarah Rosenfeld and I’m an NIH patient and volunteer. I’m passionate about paying forward the amazing gift of care and life that my dedicated NIH doctors and researchers have given to me. I’m working to support patients through Friends of Patients at the NIH because I know how incredibly scary and isolating […]
Fatima, 19, from Mauritania, celebrated her treatments by naming every bag of life-saving blood cells she received. Her aunt, Mary, through tears, calls her the “bravest” woman she has ever met. Fatima has severe aplastic anemia — her bone marrow produced no blood cells. A year ago, Fatima called her aunt and uncle (Americans who live in Vietnam) […]
Friends at NIH Helps Deliver Hope Anthony P. is a postal carrier. So he knows that old saying -“neither rain, nor sleet, nor gloom of night” – as well as anyone. Unfortunately, Anthony has an illness that can painfully keep him from his appointed rounds and put his life on hold. Anthony has Sickle Cell […]
