by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]
by Aubrey Rumore John, 22, from San Antonio, TX, is the first and only patient enrolled in a groundbreaking treatment protocol for Aplastic Anemia at the National Institutes of Health (NIH) Clinical Center. He remembers well the day he was diagnosed. It was the fall of 2015. He was on his way to his little […]
In 2017, Friends at NIH provided families 859 NIGHTS in our apartments near the NIH Clinical Center. At average per diem rates of hotels in the area, this saved families, $128,850! Housing support is more than 60% of our program services provided to patients and their families. The need is great and the waiting list […]
Heather struggled with chronic illness and multiple hospitalizations for five years. But her doctors couldn’t figure out what was behind the 45-year-old Connecticut woman’s many unpredictable symptoms, which took both a physical and emotional toll and robbed her of her job security. But last fall, Heather’s hematologist reached out to a colleague at the National […]
Happy Holidays Friends! Upon his diagnosis with a malignant brain tumor, Mykyta, 40 years old, from Chicago, came to the NIH Clinical Center seeking treatment. Throughout the course of Mykyta’s battle, his wife, Yuliya, has been by his side. Friends of Patients at the NIH, with your support, placed the Ukrainian couple in a nearby […]
Friends at NIH provides emergency financial support in many forms to patients and families facing medical crises. Less talked about but equally essential to patients and caregivers’ mental health are breaks and outings that many of us take for granted –an evening dinner at a restaurant, a shopping trip, a movie or a sports event. […]
Hello Friends, “I think we can safely say Dixon is cured,” Dr. John Tisdale recently told Dixon’s father, Leonard. What amazing words for a parent to hear from his son’s doctor! 17-year-old Dixon is one the young brave patients, treated in an experimental study at the National Institutes of Health, that Friends of Patients at […]
From Nov 2017 Newsletter… Michael points out the apartment window to the fall foliage that’s marked the change of seasons since his arrival at the NIH and reflects on facing the biggest medical challenge of his life. He’s had plenty of reasons to be anxious about the bone marrow transplant he recently received to treat […]
Destiny’s journey to the NIH for treatment was not easy. This 20-year-old from Montgomery, Alabama was diagnosed with a rare genetic disease, GATA 2 deficiency. GATA 2 is a gene that makes a protein that plays a role in regulating cells in the bone marrow to make red and white blood cells and platelets. But […]
