Partner’s Corner: Liberal Arts Incorporated, Germantown, MD
Faith Williams, owner of Liberal Arts Inc., a graphic arts company in Germantown, MD, partners with Friends at NIH to support families because it’s a “good fit.” As a cancer survivor, she knows first hand the challenges many families face when they come to the NIH. As a child in Kenya, Faith loved to draw […]
Young Ambassadors Kick off NIH Network of Champions
Global Prairie recently hosted a “FRIEND-raiser” event to raise awareness for Friends at NIH and introduce young professionals to their new Young Ambassadors Program: NIH Network of Champions. Thank you Mary Claire Carter (left) and Catlin O’Shaughnessy Coffrin, Friends’ board member, for introducing Sarah Rosenfeld (center), NIH patient and volunteer, whose story was a highlight […]
World Champion Teen Golfer/NIH Patient and his Dad
Justapra Singh holds the distinctive title of Special Olympics Golf Gold Medal Winner in April, 2018 at Macau, China. The 16-year-old from Texas, nicknamed Jus, joined Friends’ last week to play golf and speak at our golf tournament luncheon, along with his father, Dr. Mukhbir Singh. Jus stood out on the course in his fluorescent […]
Thank you NETE!
Friends recognizes NET eSolutions (NETE) for their partnership, deep commitment and support to patients and Friends at NIH. In appreciation of their continued generosity, Diane Baker, Special Advisor to the Board and Heidi Williams, CEO, presented the President, Jolly Vasani, and Avneet Hundai, Director of Corporate Support, with a plaque and named NETE a 2018 […]
Even Better than Flowers – Give Mom a Gift That Can Save Lives
Heather, a 45-year-old single mother from Hartford, Connecticut, has good news! (Friends brought you Heather’s story in January). She suffered chronic illnesses and multiple hospitalizations for five years, but doctors couldn’t figure out what was wrong. Then she came to the NIH, was diagnosed with a rare blood disorder – HES – and enrolled in […]
NIH Studies A Family’s Rare Genetic Disease
At age 28, Santiago has become the first patient at the NIH to undergo a bone marrow transplant for a rare genetic condition, CTLA4. The disorder, which severely impairs a person’s normal regulation of the immune system, was discovered at the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) just four years ago. The […]
Hope for Amber
by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]
The First Patient in a Unique Research Study
by Aubrey Rumore John, 22, from San Antonio, TX, is the first and only patient enrolled in a groundbreaking treatment protocol for Aplastic Anemia at the National Institutes of Health (NIH) Clinical Center. He remembers well the day he was diagnosed. It was the fall of 2015. He was on his way to his little […]
