“I’m the New Me” – An Update on Madalynn One Year After Her Bone Marrow Transplant
In February 2019, Madalynn was lying in a hospital bed at the Clinical Center, facing complications after her bone marrow transplant. Fast forward to February 2020 when Madalynn, now 24 years old, visited the Clinical Center for her one-year follow-up. She feels happy, healthy and essentially symptom-free. Madalynn suffered from a GATA 2 Deficiency, a […]
2020 Charity Golf Tournament Rescheduled
In an abundance of caution and in the best interest of our guests, sponsors, and staff we have decided to postpone our charity golf tournament, scheduled for April 20th, to later in the year. Please know this decision was not made lightly, we have been in consultation with the expert health professionals that work here at the NIH and have come to the conclusion that moving our tournament date is the best way to ensure the health and well-being of everyone involved during this crucial time.
Bonnie’s Brain Tumor “Gift”
Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]
Suite America’s Support For Families
Suite America has provided a furnished apartment near the NIH, free of charge, to Friends’ patients and families for seven years. Numerous families have enjoyed the privacy and comfort of the apartment at The Monterrey, located on Rockville Pike, and the many amenities the building offers. James Corry, Director of National Sales in the Northern […]
Aaron’s Story – Bold Treatment and Strong Family Support
Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]
Ana Continues to Make a Lasting Impact
For patients in lifesaving treatment studies and their caregivers, it’s hard to take a break. Days are often long and unpredictable. Ana’s Impact continues to provide emotional and social support to families by providing a break – outings to a restaurant, a movie, even a trip to the mall. Patients tell us that even a […]
Daniel’s Story – The Gift of Housing
Cooking is Daniel’s passion and work. A chef and restaurant consultant from Lawton, OK, Daniel, 53, is stirring up a special stovetop meal in the comfort of an apartment, sponsored by Friends’ donors at The Flats 8300 near the NIH campus. Daniel feels good and says standing, including at the stove, is part of his […]
Matthew’s Drive for a Cure
Matthew and wife, Dana, both worked two jobs until recently. He has always been too proud and independent to need or ask for help, Dana explains. But his journey from his home near Baltimore to the National Institutes of Health to enroll in a treatment study tipped the scales of challenges and they reached out […]
