Meghan has a rare and life-threatening genetic disease, Dock8 deficiency. The disease, itself, was only recently discovered in 2009. Like many genetic diseases, the discovery and possible treatments were made possible by the mapping of the human genome led by Dr. Francis Collins, now Director of the NIH. All her life, Meghan has had hundreds […]
Thank you to sponsors, guests and the band! Sandeep Somaiya, Board Member and Platinum Sponsor from NET eSolutions, introduced NIH Director Francis Collins. Dr. Collins thanked Friends at NIH for its critical support to patients and families and noted it’s been quite a journey since the first gala in a car dealership to this […]
Griffin Patrick Matuszek, 9, has been collecting coins to donate to Friends at NIH for almost a year because he knows the NIH is “an awesome place and saves lives.” A fourth grader at Barnsley Elementary School in Rockville, Griffin was inspired by a coin collection at school for another charity. He delivered a jar […]
Café Deluxe is our newest partner to help support patients and families. The restaurant located at 4910 Elm Street in Bethesda, near the NIH, is owned by Chef Geoff (Geoffrey Tracy) and Brian Sullivan. Café Deluxe provides discounted dinners to patients’ families through Friends’ special program, Ana’s Impact, established in memory of Ana Longenderfer Dougherty. […]
Faith Williams, owner of Liberal Arts Inc., a graphic arts company in Germantown, MD, partners with Friends at NIH to support families because it’s a “good fit.” As a cancer survivor, she knows first hand the challenges many families face when they come to the NIH. As a child in Kenya, Faith loved to draw […]
Global Prairie recently hosted a “FRIEND-raiser” event to raise awareness for Friends at NIH and introduce young professionals to their new Young Ambassadors Program: NIH Network of Champions. Thank you Mary Claire Carter (left) and Catlin O’Shaughnessy Coffrin, Friends’ board member, for introducing Sarah Rosenfeld (center), NIH patient and volunteer, whose story was a highlight […]
Friends recognizes NET eSolutions (NETE) for their partnership, deep commitment and support to patients and Friends at NIH. In appreciation of their continued generosity, Diane Baker, Special Advisor to the Board and Heidi Williams, CEO, presented the President, Jolly Vasani, and Avneet Hundai, Director of Corporate Support, with a plaque and named NETE a 2018 […]
At age 28, Santiago has become the first patient at the NIH to undergo a bone marrow transplant for a rare genetic condition, CTLA4. The disorder, which severely impairs a person’s normal regulation of the immune system, was discovered at the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) just four years ago. The […]
by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]
