It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]
Meet Madalynn, 22 years old from Woodsboro, TX. A young mother of a baby girl, a student, and a Texas hurricane survivor. 49 days! Madalynn counts down the days from her bone marrow transplant when, barring complications, she hopes to return home to see her 8-month old baby girl. She’s from a small town near […]
Tune in to CBS’s 60 Minutes Sunday to learn about Dr. John Tisdale’s groundbreaking gene therapy treatment for Sickle Cell Disease. You’ll hear from Dr. Francis Collins, Director of the NIH, and…watch for it…see their band performing at Friends at NIH’s Friends Night Out Gala September 2018! Maybe you were there dancing! Congratulations to Dr. […]
Four years ago, Dr. Marcela Ferrada faced a promising career as a critical care and infectious disease attending physician at both the National Institutes of Health (NIH) Clinical Center and Johns Hopkins. She had attained her goal after completing dual fellowships at the two prestigious medical centers. Then she got very sick. Her diagnosis of […]
Friends at NIH is partnering with the Relapsing Polychondritis Awareness and Support Foundation (RPASF) in New York City to provide transportation support to patients for travel expenses to the NIH so they may participate in the groundbreaking study of this rare disease. To learn more visit: http://www.polychondritis.org/patient-support/ “Relapsing polychondritis is a disease that few people […]
Therese Draddy, Program Manager, accepted the Partnership of the Year Award with Cassandra Hairston from the NIH Federal Credit Union at Leadership Montgomery’s yearly awards luncheon on February 8. “The NIHFCU employee engagement program is an enormous boost to our work,” said Draddy. “Their dedication shows they feel and understand our passion to support patients.” […]
Several thousand rare diseases affect an estimated 30 million people in the United States. Yet only about 5 percent of these diseases have a treatment approved by the Food and Drug Administration. On Feb. 28, 2019, the National Institutes of Health joins the global day of awareness to host Rare Disease Day at the NIH, […]
Friends’ 11th Annual Golf Tournament Thursday, May 2, 2019 Enjoy golf on a premiere course, barbecue lunch and prizes. Registration and sponsorships open soon. Friends’ Night Out An Evening to Celebrate Thursday, October 24, 2019 Enjoy food, drinks and special musical entertainment for an evening of fun and friendraising. Watch for registration and sponsorships soon. […]
Supporters help patients in so many creative ways. Mina Jain, Research Coordinator in the NIH Clinical Center Physical Therapy Department asked her holiday party guests to bring gift cards instead of hostess gifts to donate to Friends’ patients and families. Mina delivered the bagful of colorful gift cards recently to Program Manager Therese Draddy. The […]
