Destiny’s journey to the NIH for treatment was not easy. This 20-year-old from Montgomery, Alabama was diagnosed with a rare genetic disease, GATA 2 deficiency. GATA 2 is a gene that makes a protein that plays a role in regulating cells in the bone marrow to make red and white blood cells and platelets. But […]
My name is Sarah Rosenfeld and I’m an NIH patient and volunteer. I’m passionate about paying forward the amazing gift of care and life that my dedicated NIH doctors and researchers have given to me. I’m working to support patients through Friends of Patients at the NIH because I know how incredibly scary and isolating […]
There’s a hidden treasure in our country that I’m proud to introduce you to — the National Institutes of Health Clinical Center where life-saving therapies are being discovered through clinical trials. Every one of the thousands of patients seen here each year is part of a clinical trial — meaning they have exhausted traditional medical […]
I have been involved with an incredible charity for several years, “The Friends of Patients at the NIH”. This year, the role of this organization has become more important than ever before, with so much uncertainty about the future of funding for the clinical research at the NIH – which has led to the discovery […]
On the rooftop of our building, I see the lights of a national gem two blocks away — the National Institutes of Health (NIH), our country’s largest research hospital. From this distance, it’s hard to fathom the breadth of activity going on each day in experimental trials. As you walk through hallways with patients’ rooms and […]
I have been involved with the Friends of Patients at the NIH for several years, as a member of the Board of Directors and as a volunteer. This year, the role of this organization has become more important than ever before, with so much uncertainty about the future of funding for the clinical research at […]
