NETE’s Big Heart Gives Patients a Home
It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]
CBS 60 Minutes features NIH’s Efforts to Cure Sickle Cell Disease this Sunday March 10th
Tune in to CBS’s 60 Minutes Sunday to learn about Dr. John Tisdale’s groundbreaking gene therapy treatment for Sickle Cell Disease. You’ll hear from Dr. Francis Collins, Director of the NIH, and…watch for it…see their band performing at Friends at NIH’s Friends Night Out Gala September 2018! Maybe you were there dancing! Congratulations to Dr. […]
NIH Doctor Studies Her Own Rare Disease
Four years ago, Dr. Marcela Ferrada faced a promising career as a critical care and infectious disease attending physician at both the National Institutes of Health (NIH) Clinical Center and Johns Hopkins. She had attained her goal after completing dual fellowships at the two prestigious medical centers. Then she got very sick. Her diagnosis of […]
Servando’s Story
Servando, a 37-year-old chef, from Tulsa, OK, has Chronic Myeloid Leukemia, or CML. His treatment has been more complicated than for most patients with this potentially fatal blood cancer. So as a last resort, he came to the NIH with the hope for a cure. In CML, the bone marrow makes too many white blood […]
Innovation in Rare Diseases – Make your Gift Count
Rachel from Indiana came to the NIH this week for the first time with her husband Richard. The 45-year-old mother of four teenagers has a rare autoimmune disease that is progressively life-threatening if untreated. After tests and conferences with her medical team, Rachel is excited that new treatment options are open to her. She hopes […]
NIH Researcher Says Support to Patients is Critical
Patients are the key to successful research at the National Institutes of Health. So, too, are the dedicated researchers with whom they partner. Together, they pioneer lifesaving discoveries. Dr. Carsten Bonnemann says the support to patients from Friends at NIH is essential! “The NIH covers many costs, but we can’t cover all the financial hardship […]
Meghan’s Search for a Cure
Meghan has a rare and life-threatening genetic disease, Dock8 deficiency. The disease, itself, was only recently discovered in 2009. Like many genetic diseases, the discovery and possible treatments were made possible by the mapping of the human genome led by Dr. Francis Collins, now Director of the NIH. All her life, Meghan has had hundreds […]
FRIENDS’ NIGHT OUT Celebration 2018
Thank you to sponsors, guests and the band! Sandeep Somaiya, Board Member and Platinum Sponsor from NET eSolutions, introduced NIH Director Francis Collins. Dr. Collins thanked Friends at NIH for its critical support to patients and families and noted it’s been quite a journey since the first gala in a car dealership to this […]
Danielle is Counting on Us
20 year-old Danielle has been a patient at the National Institutes of Health (NIH) since she was 10. She’s now facing a kidney transplant, and the life-altering chance to be free of dialysis. She’s one of the many patients and families Friends of Patients is helping this year as they navigate critical treatment at the […]
