Thank you NETE!

Friends recognizes NET eSolutions (NETE) for their partnership, deep commitment and support to patients and Friends at NIH. In appreciation of their continued generosity, Diane Baker, Special Advisor to the Board and Heidi Williams, CEO, presented the President, Jolly Vasani, and Avneet Hundai, Director of Corporate Support, with a plaque and named NETE a 2018 […]

Even Better than Flowers – Give Mom a Gift That Can Save Lives

Heather, a 45-year-old single mother from Hartford, Connecticut, has good news! (Friends brought you Heather’s story in January). She suffered chronic illnesses and multiple hospitalizations for five years, but doctors couldn’t figure out what was wrong. Then she came to the NIH, was diagnosed with a rare blood disorder – HES – and enrolled in […]

NIH Studies A Family’s Rare Genetic Disease

At age 28, Santiago has become the first patient at the NIH to undergo a bone marrow transplant for a rare genetic condition, CTLA4. The disorder, which severely impairs a person’s normal regulation of the immune system, was discovered at the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) just four years ago. The […]

Hope for Amber

by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]

The First Patient in a Unique Research Study

by Aubrey Rumore John, 22, from San Antonio, TX, is the first and only patient enrolled in a groundbreaking treatment protocol for Aplastic Anemia at the National Institutes of Health (NIH) Clinical Center. He remembers well the day he was diagnosed. It was the fall of 2015. He was on his way to his little […]

Be a Volunteer for Research at the NIH

Do you know that the NIH Clinical Center recruits healthy volunteers to participate in research studies? Healthy participants play a key role in the development of new drugs and treatments. They provide researchers with important information for comparison with people who have specific illnesses. Every year nearly 3,500 healthy volunteers participate in research studies at […]

July 2017 Newsletter

– What is First in Human? Watch Discovery’s First in Human Film Series about the NIH on August 10th
– Giving Back to Science… a Leukemia Research Trial
– Take Me Out to the Ballgame!
– Save the Date for the Annual Friends’ Night Out

June 2017 Newsletter

In Honor of Fathers Daddy, Are You Going to Die? Damion B. lights up when he talks about his daily morning video chat with his eight- and nine-year-old daughters. DeJanae and Destiny ask him if they can talk to his nurse. They giggle and say hi. Then they pause and quietly ask, “Daddy are you […]

May 2017 Newsletter

Friends at NIH  Helps Deliver Hope Anthony P. is a postal carrier. So he  knows  that old saying -“neither rain, nor  sleet, nor gloom of night” – as well as anyone. Unfortunately, Anthony has an illness that can painfully keep him from his appointed rounds and put his life on hold. Anthony has Sickle Cell […]

A Mother’s Day Tribute

May is when we celebrate Mother’s Day The medical team at the National Institute of Allergy and Infectious Diseases (NIAID) nursed Antoinette Royster from the aftermath of a coma to recovery, but she attributes Friends at NIH with saving her life. Without the financial support from Friends, she says she would have been forced to […]

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