Meet one of our incredible Sickle Cell patient heroes, Chynna! Her journey is a testament to strength and resilience that inspires us all. We’re thrilled to have the support of our esteemed partners, Dr. John Tisdale and Dr. Courtney Fitzhugh from NHLBI, who are true champions in the fight against Sickle Cell disease. Together, we’re creating a community of hope and healing! So, grab a cozy seat and click on the video below…
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When you give to Friends of Patients at the NIH your support can go to help patients in a variety of ways.
Whatever need they have, we work to support them. Here are some of the ways we have assisted patients in the past.
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Jerry Sachs is a man with a mission. As a patient at the National Institutes of Health Clinical Center for 40+ years, Jerry is passionate about giving back to the NIH.
“There isn’t enough I can do to show my appreciation for this treatment they have given me,” Jerry says.
Jerry wants donors to know that their donations make a difference helping to keep patients in many life-saving trials is critical for their well-being and also furthers medical science.
Friends 2019
17-year-old Dixon
Friends of Patient at the NIH provided support to 17-year-old Dixon and his family last year when he came to the NIH seeking a stem cell transplant for Sickle Cell Disease.
Dr. John Tisdale, his physician, who has pioneered this experimental treatment, says it is safe to say Dixon is cured! What great words for Dixon’s family to hear!
Initially, Dixon’s father, Leonard, took him and his older sister, Flavia, to India from their native country of Uganda. Both children had Sickle Cell Disease.
The family could only afford treatment for one child at a time, so Flavia told her little brother, “You go first.” Unfortunately, Flavia died waiting for medicine.
When Dixon’s father heard about this treatment in the United States, he resolved to do everything possible to save Dixon’s life. Hear Dixon’s story in his own words, meet his father and the physician/researcher, Dr. John Tisdale.
Please help us help provide emergency financial support to many more NIH patients in clinical trials, like Dixon.
Friends of Patients at the NIH is a 501c3 charitable organization. Your gift that means the world to patients and their families is tax deductible.
We help patients take care of their essential needs so they can focus on healing.
The Friends are here to support you and your family during your clinical trial.
Patients rely on your generosity as they move research forward. Donate today and help support them!